Mom and Me

My mother is in rehab now. She had surgery about a week ago and is already up, walking (with help), and dealing with her granddaughter’s death about as well as can be expected.

I call her on the phone a couple of times a day. I wish I could get up there, but I’m too sick from the chemo. Yesterday, when I called and asked for mom, a nurse told me she was in the beauty parlor. For reasons that have nothing at all to do with beauty, that was the best news I’d had in while.

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Not surprisingly, I’ve been getting some psychiatric and psychological help for about a year now. It was recommended by one of my chemotherapy nurses after I spent a long chemo session talking about my feelings.

The psychiatrist, whom I really like and admire, doesn’t have me stretch out on a couch or anything like that. We talk for a bit and he makes comments, but he’s really more involved in prescribing drugs than in anything like psychotherapy, and that’s okay with me.

I was in therapy once, for one session. The doctor made a big deal out of telling me I could tell him anything at all and it wouldn’t bother him, and that sounded good to me. So I told him something. I don’t remember what it was (this was about 40 years ago) but it must have been pretty bad because when I looked at the shrink his face was twisted with disgust.

So much for that.

This may come as a surprise to most who know me, but I’m not crazy, or not really crazy. I don’t want to take my own life or harm anybody else, I don’t hear voices, and I have no ideas at all that I am Napoleon or Captain Hook or Al Capone.

I guess that means I don’t really need to see a shrink. What I do need is help dealing with the things are happening in my life, to me and – even more – to people I love. I am sad and sometimes scared. I’m angry. I can’t sleep without aid. I have no energy to speak of. My memory is full of troublesome holes. But I’m not crazy.

That’s where Linda comes in. I call her my therapist though the VA gives her some other title.
She and I have a good relationship. I see her at least twice a month and I am able to tell her the truth without worrying about her judgments. We like each other. She’s helped me accept the truth and know that my feelings are to be expected and are justified.

I saw her last week and when I told her about my mother’s hospitalization and my niece’s suicide she didn’t hide her reaction or retain her professional detachment. She blurted a short sentence that you might expect to hear from a carpenter after he hammers his thumb.

I started to weep, something I’ve been doing a lot of in the last few days. She simply let me cry. And that was okay. I told her what I was feeling and she nodded and she said, "Of course you’re sad and frightened and angry. You should be."

She also told me I needed to focus more on myself. I know the truth of that. I have to take care of myself.

I’m not trying to sound like a candidate for sainthood. But she’s right. I haven’t been thinking about myself…at least not as much as I usually do. "Be nice to yourself," Linda said.

To be honest, right now there aren’t many ways I can be nice to myself. I’ve no appetite to speak of. I don't drink anymore. I can’t go sailing or walking. My libido has left town.

But I can read.

So I went online and ordered two of Garrison Keillor’s books – the only ones I didn’t already have in the stack by my bed.

The books arrived yesterday and I’ve already devoured one. It was wonderful to spend time in Lake Woebegon instead of in my own head.

Mom

My phone rang yesterday afternoon. It was my brother, Pat, the lawyer in Clearwater. He called with the news that my mother was in the hospital. I wasn't really surprised. You see, my ninety-two year old mom has recently been a bit confused when she and I spoke on the phone. For the last few weeks, she seemed always to be searching for words, sometimes saying things that didn’t make sense.

I’d already talked to Pat about her problem. He sees her almost every day. He had noticed the same things but knew there was no way we could force her to go to a doctor, at least not yet. He said he would watch her carefully, but for now he would let it pass. I agreed.

We were wrong.

My mom, Mary, telephoned Pat in mid-morning yesterday. When she spoke, nothing she said made any kind of sense at all. Oh, she was able to talk, and to say real words, but the words she said had nothing to do with anything. She might want to say mailbox and instead, she’d say ice cream bar or puppy dog.

And she was terrified.

Pat took mom to the hospital in town where the doctors quickly diagnosed her problem as something called aphasia.

Pat explained what aphasia really is, but I didn’t get it. I was too worried about my mother and wondering what the hell I should do. Later, after we hung up, I looked it up online and discovered that it is a language disturbance caused by a lesion of the brain, making an individual partially or totally impaired in her ability to speak, write, or comprehend the meaning of spoken or written words.

Mom was held overnight. I spent most of the night worrying, sure she was either going to die or end her life in a nursing home. Some time around midnight, I decided to reschedule my next chemo so Lynne and I could rush up to be with her.

This morning, I found out that aphasia often cures itself and doesn’t last a long time. In fact, my mother is already somewhat better. A few moments ago, she and I spoke on the phone and even laughed together. Some of what she said didn’t make sense but that was okay and it will probably pass. She even thinks she’ll be able to keep working the New York Times crossword each day and that’s a relief.

So I feel better today. And that’s good. You see, I’ve been having a rough go since my last chemotherapy. It’s more than two weeks now and I am just starting to feel good enough to want to write anything at all. My appetite has returned enough that I don’t have to force everything down my throat and I'm not forced to spend the entirety of each day in bed.

Of course, my mother knew I’d been having a rough time, so before we quit talking, she asked me how I was doing. I told her I felt okay. I also told her Lynne and I would be up to visit her as soon as possible.

My mother asked me if I have any more chemo scheduled and I told her I did, in just a week, and she told me not to worry about her, that she would be fine.

"Hell," she said, "just stay home and take care of your damn self for a while."

I laughed.

Now, you might think that rough language was caused by my mom’s bout of aphasia. It wasn’t.

That’s the way my mother – a bright or maybe brilliant retired English teacher/librarian – talks.

Not always, but sometimes and only with me. She once explained to me that she talks that way because she’s retired, never in a classroom or library, and she gets to cuss a bit when she feels like it.

When I heard her words, I really felt relief because I truly knew she was already recovering.

Damn, it made me feel good.

Yuck

Cat-scan today. I won’t learn what the scan discloses until sometime next week. I guess I shouldn’t be frightened, but I am. I figure the recent weight loss and increased fatigue signal problems.

Problems….

Anyway, I went and lay in the machine with my arms above my head and kept still while I was being scanned and the technician and I hardly talked. That’s okay. I didn’t really have much to say and she looked angry.

I telephoned Lynne from the hospital hallway just to let her know I was done and she told me she’d been praying for me and knew without a doubt that I was going to be okay. I hope she’s right, but doubt it. I keep those doubts to myself though I’m sure she knows.

I’d planned to write today, but I just don’t have the steam. I try to read and can’t remember what I read from paragraph to paragraph. I could listen to the Chicago Cubs baseball game on my computer, but I just don’t care. I’ll sleep. Then later, Lynne and I will eat, or she’ll eat and I’ll make believe and then I’ll go to bed and she’ll be alone.

Some of the days are like this. There’s no real way to fight it. All I can do is hope tomorrow is a bit brighter.

Fear

I went to the VA hospital again today. Nothing serious, I just had to talk to my therapist, Linda Vesley. She and I like each other. We’re friends and I’m glad she’s in my life right now. But that’s a different story.

Today was a routine visit. She always asks how I’m feeling and how I’m getting along with my wife and about work and so on. She’s not a shrink so her insights, while useful, aren’t so much about what makes me tick as what will enable me to keep ticking.

Linda didn’t feel well today. I knew that as soon as I saw her. She was nauseous and achy. In fact, we cut my visit short.

That’s okay because I often don’t know what to say. I’m not real happy but I’m also not real sad. Lynne and I are getting along and – with the help of a new drug – I’m able to write a bit. My main problem is that the Cubs are already down two games to the Dodgers in a five-game series.

Imagine that.

Wait ‘til next year, Cubs fans!

Oh, yes. I did tell her I’m feeling a bit nervous about learning the results of may last CAT scan. I’ll go to the hospital early Monday morning to see my oncologist and get the news. I’ve been having a little pain, so I’m convinced I’m not going to like what I hear. It’s been about nine months, now, since my last chemotherapy, so I figure I’m due for some bad news.

I’m not often nervous when I’m waiting for test results. Once, after blood work and a colonoscopy, I could have sworn I heard the doctor say "liver cancer." I was about half dopey from drugs, though, so I let his comment pass. Later, after the drugs wore off, the only thing I could remember about the test were those two words.

Liver.

Cancer.

Unfortunately, It was Friday evening and the doctor’s office was already closed. I was scared. I was even more scared after I started doing research on my computer and read all about liver cancer.

When the doctor showed up at his office on Monday morning, I was sitting on the ground by the front door, waiting. When I told him why I was there he looked shocked. "No," he said. "No. I told you the scan was clear and the blood work indicated no signs of liver cancer."

I get my test results in writing now.

Anyway, I’m a bit nervous about this last cat scan. I’ll concentrate on the Cubs playoff games Saturday and Sunday, if they make it that far. I’ll watch Notre Dame play Stanford on Saturday. I’ll go shopping and maybe cook a small roast on Sunday. Lynne and I will go for a drive and maybe I’ll go to church with her on Sunday. She likes when I do that, though I think God doesn’t pay much attention to me since I’m not a regular.

Then I’ll get the results Monday morning. I hope Linda, my therapist, feels better by then. Just in case, you know. Just in case I need her.