Good Day

It’s amazing. Some days are bad. Very bad. And then, just when I start to think all my days are going to be bad, I have a day that’s so good it can hardly be believed.

Today is a day like that. Good, I mean. Wednesday, two days ago, was one of the bad ones.

On Wednesday, I had chemo. I was only able to walk about 50 yards along the sidewalk leading from the hospital’s front door to the parking lot before I had to sit down and rest. I was nauseous on the drive home, so much so that I pulled off the road to puke. I spent the rest of the day in bed except for a few minutes I devoted to working on that day’s entry for this blog.

Yesterday was so-so. But that’s okay because it turned out to be just a transition.

Today’s been great. I woke up feeling good. No nausea. I had some energy. The drive to the VA hospital was pleasant: traffic was light, it was cool, the sun was just coming up. The crossword puzzle I brought with me was not quite impenetrable and I was called on time for my appointment.

Linda Vesley, my therapist, was, as always, wonderful and understanding. I enjoy the time I spend with her. She helps, she's funny and smart, and great company. The stuff we talked about was sobering, but the session was pleasant.

The drive home was good. The Symphony Orchestra of Ireland was on the radio playing Mozart. I didn’t have to vomit.

Now I'm up from my nap. I’m going to write a bit and I expect the writing to go well. I’ll read and enjoy what I read. There won’t be any bills in the mail or, if there are, I won’t open them. I expect to eat something unhealthy but enjoyable and then waste my time watching a movie. Lynne and I will not argue about money or anything else.

I’m not going to complain, today, or try not to, because this is one of those rare days when I feel happy to be alive.

Many people who know me well believe I’m a curmudgeon, a grouch, a cynic.

And I am, kind of. Or maybe the problem is that days like this don't come along all that often when cancer's in the picture.

Anyway, I'm going to enjoy it while it lasts.

Mixed Feelings

I went for chemo yesterday and was told they couldn’t pump any more poison into my system for a week or so. My white blood cell count was so low, the nurse said, that if I had the treatment I’d almost certainly get some sort of infection.

That happened to me last year. It started after a chemotherapy treatment when I went through a couple of terrible days. I thought it was just a rough patch, so I tried to ride it out. My wife kept saying I should go the hospital, but I refused until it couldn’t be put off any longer.

I passed out in the elevator on the way from our apartment down to the parking lot, came to, then passed out again as Lynne was driving me to the VA hospital.

I hate it when she says something I disagree with and then is proved right.

Anyway, by the time I was at the ER, my blood pressure was 80 over 40. I’m not a doctor, but on House or Gray’s Anatomy when a patient’s blood pressure is that low they start warming up the machine to jolt his heart back into working condition.

The doctors didn’t have to jolt me back to life, but I did spend about a week in a segregated room, flat on my back, too weak to sit up.

I was scared.

I’m always scared when I’m admitted to the VA hospital. Don’t misunderstand, it’s a great hospital with wonderful doctors and nurses and orderlies and maintenance workers. The food is good and so are the televisions. But there’s part of me that can’t seem to let go of the idea that one day I’m going to walk into that very hospital and not walk out.

I’d rather not know where I’m going to die.

So, I have mixed feelings right now. I'm glad I'm not suffering from the nausea and the other stuff you'd rather not hear about and I'm grateful they caught my low white cell count so I don't have to worry about being hospitalized for now. But I don't like the idea of giving this thing that's eating me alive from the inside out any kind of rest to get bigger or stronger.

Good Eats

I know there are a lot of cancer patients, most I guess, who pay a great deal of attention to their diets as part of their treatment.

I’m not one of them.

I figure I’m going to lose weight in any case, right? So that’s certainly not an issue. I already take medicine for high cholesterol, blood pressure and baby aspirin as a blood-thinner, so I don’t have to worry too much about those issue. Chemo continues to make me nauseous so I have to force myself to eat most times. So when I do eat, why shouldn't I eat stuff that’s appealing. To me. Not to my wife.

My oncologist and the nurses who treat me have never, as far as I remember, given me any orders or suggestions to moderate my diet. A lot of the pamphlets and magazines in the waiting room are filled with sample diets featuring things like raw vegetables and cereals I’ve never heard of. My General Practitioner used to make suggestions, now she just asks how my appetite is and when I tell her I often eat two chili dogs for dinner she shakes her head and goes "tsk-tsk."

My wife keeps talking about eating blueberries. Or maybe cranberries. I’m not sure. Along with cancer, I’ve developed an amazing power lose my hearing at will.

I had chemo yesterday. I was nauseous before I walked from the hospital a quarter of a block to my car. On the way home, I stopped at the grocery store. I bought two pounds of baby back ribs and two bottles of bar-b-q sauce. When I got home, I put the ribs and one bottle of sauce in a crock pot and turned on the heat. Then I took some anti-nausea medicine. I had a polish sausage and cheese with onion sandwich. Lots of mustard. Then I went to sleep.

I woke late but managed to work for a couple of hours, then ate dinner. When I carried my plate of ribs past Lynne, she shook her head and made the same "tsk-tsk" sound my general practitioner makes when I talk about food.

The ribs were great. Greasy, but great. They almost overloaded my plate. And I ate ‘em all. My wife is trying to diet so she ate a Weight Watchers meal, then had some boiled squash (no butter).

Before going to sleep I had a slice of devil’s food cake with marshmallow icing and a scoop of chocolate ice cream. Then I took my pills and pretty much passed out.

When I woke this morning, I was sick to my stomach. I threw up once before I left the house for a fellowship meeting and an appointment with a psychologist. We didn’t talk about food.

And guess what? I would have been nauseous and thrown up this morning even if I’d eaten nuts and berries last night. I just wouldn’t have enjoyed my meal at all. I wouldn’t have been able to dig into my bar-b-q ribs and cake and ice cream.

My wife swears she enjoyed her diet dinner and squash without butter. For some reason, I don’t buy it. I think that’s strategy she using to try to make me change – with the best intentions in the world, of course. What I know for sure is that loved meal.

Listen, I know my high-fat-anti-good-stuff-diet isn’t going to make my cancer go away. But it also isn’t going to make it any worse. It does keep my weight up enough so that a strong wind won’t carry me away. I haven’t yet had to buy any skinnier clothes. But what it does, and what it will continue to do as long as I’m able and have anything to say about it, is provide me with pleasure.

Tonight I’ll have either chili and eggs with melted cheese or two cheeseburgers. Oh, yeah, and more cake

The Blob

I had the first chemo session of my new course of treatment yesterday. I’ll get chemo once a week for three weeks, then take a one-week break, then repeat the cycle, probably for about six months.

It had been several months since my last session. I’d forgotten what it was like to sit in the oncology waiting room early in the morning, one of a dozen or so patients, all of us trying to make believe our lives are somehow normal.

I’ve been on what’s known as a "drug holiday." That sounds like it’s the kind of vacation I might take to buy marijuana, but it’s nowhere near that much fun. It’s a break I was given so my body could recover a bit from the side effects that go along with injecting toxic stuff into my bloodstream.

So there I was, waiting to start my treatment and nodding hello to the other men and women in the room. It’s pretty easy to figure out pretty much where any patient stands in terms of treatment.

The first-timers, especially, are obvious. They’re usually not alone. Most times some family member or loved one sits alongside, not quite managing to look brave. The new patient usually looks stunned, as if he’d opened a newspaper to find his own obituary. There’s a lot of eye movement, looking for an exit, a place to run and not finding a way out.

Most of the patients, by the way, are men. Not many women show up for cancer treatments. I think that’s because until very recently women were not as prevalent in the service so most of the women veterans just aren’t old enough, yet, to have come down with cancer. There are plenty of young women in the hospital. I see them being wheeled down the halls or limping along on crutches or in the mental health clinic looking as if they’re trying to get free of some fear or demon that chased them home from the desert.

It’s also easy to identify the patients who, like me, are in the middle of treatment. Most of us look resigned. We know what’s going on and don’t like it a whole lot but, what the hell, there’s no choice. We know there's not really any hope but we can still fake it. Like me, the others try to present a cheery face. We know enough to bring something to read or a crossword puzzle and maybe a cup of coffee to make the wait more bearable.

There’s a lot of waiting. Blood has to be drawn and taken down to the lab. Tests have to be run. The doctor has to give the okay for the actual chemotherapy and then the pharmacy has to see to it that the chemicals are mixed properly. I guess they can’t pre-mix this stuff. Given enough time it would probably eat its way out of the plastic IV bags it’s kept in. Like the Blob in the horror movie.

Then there are the patients who are near the end of their treatment. Not because they’re getting better but because the road they’re on is coming to a halt. Sure, there may be something waiting on the other side, but this side is about all played out. No matter what your faith or belief the knowledge that you’re near the end can weigh you down.

I didn’t enjoy my time in the clinic yesterday. It was brief. I’m getting what’s known as a "push" – a relatively quick dose of what looks like about six ounces of some clear liquid. As always, the nurses and the volunteers who work in the clinic were wonderful. They know every patient by name and they smile and deliver a steady dose of kindness and real love even as they have to be careful not to care too much.

So, I got my infusion. I left. When I left, I made sure I didn’t look in the waiting room again. It felt good to leave the hurt an the anxiety and the feigned cheerfulness behind.

Now, I’m nauseous. I had the hiccups for about an hour earlier. I've puked a couple of times. But overall I feel pretty good.

Fear

I went to the VA hospital again today. Nothing serious, I just had to talk to my therapist, Linda Vesley. She and I like each other. We’re friends and I’m glad she’s in my life right now. But that’s a different story.

Today was a routine visit. She always asks how I’m feeling and how I’m getting along with my wife and about work and so on. She’s not a shrink so her insights, while useful, aren’t so much about what makes me tick as what will enable me to keep ticking.

Linda didn’t feel well today. I knew that as soon as I saw her. She was nauseous and achy. In fact, we cut my visit short.

That’s okay because I often don’t know what to say. I’m not real happy but I’m also not real sad. Lynne and I are getting along and – with the help of a new drug – I’m able to write a bit. My main problem is that the Cubs are already down two games to the Dodgers in a five-game series.

Imagine that.

Wait ‘til next year, Cubs fans!

Oh, yes. I did tell her I’m feeling a bit nervous about learning the results of may last CAT scan. I’ll go to the hospital early Monday morning to see my oncologist and get the news. I’ve been having a little pain, so I’m convinced I’m not going to like what I hear. It’s been about nine months, now, since my last chemotherapy, so I figure I’m due for some bad news.

I’m not often nervous when I’m waiting for test results. Once, after blood work and a colonoscopy, I could have sworn I heard the doctor say "liver cancer." I was about half dopey from drugs, though, so I let his comment pass. Later, after the drugs wore off, the only thing I could remember about the test were those two words.

Liver.

Cancer.

Unfortunately, It was Friday evening and the doctor’s office was already closed. I was scared. I was even more scared after I started doing research on my computer and read all about liver cancer.

When the doctor showed up at his office on Monday morning, I was sitting on the ground by the front door, waiting. When I told him why I was there he looked shocked. "No," he said. "No. I told you the scan was clear and the blood work indicated no signs of liver cancer."

I get my test results in writing now.

Anyway, I’m a bit nervous about this last cat scan. I’ll concentrate on the Cubs playoff games Saturday and Sunday, if they make it that far. I’ll watch Notre Dame play Stanford on Saturday. I’ll go shopping and maybe cook a small roast on Sunday. Lynne and I will go for a drive and maybe I’ll go to church with her on Sunday. She likes when I do that, though I think God doesn’t pay much attention to me since I’m not a regular.

Then I’ll get the results Monday morning. I hope Linda, my therapist, feels better by then. Just in case, you know. Just in case I need her.

Dying Ain't Fun

I just finished reading Art Buchwald’s book, "Too Soon to Say Goodbye," written, much of it, while he was in a hospice in Washington.

Buchwald was lucky. In early 2006 he went in the hospice expecting to die from kidney failure. By his own admission, he figured he had about three weeks to live. Instead, his kidneys somehow got better. In June of that year he left the hospice for his summer home on Martha’s Vineyard. He lived, finally, until January 17, 2007.

Buchwald was comfortable with the idea of his death. He had the opportunity to undergo kidney dialysis and, instead, decided to die with dignity. As it worked out, he lived longer than anybody expected and had a great time in the hospice. He was visited by family and friends and by politicians and newsmen and people he’d never met. He ate what he wanted to eat. He was awarded the French equivalent of the Legion of Honor for his writing. He was spoiled.

"I never realized dying could be so much fun," he wrote.

You know, Buchwald was right, but only part right.

Of course, being sick isn’t a lot of fun. And not everybody has the chance to make going gentle into that good night a protracted visit with loved ones. Pain is pain, no matter what your outlook.

But still….

What made Buchwald’s end so much fun was his decision that, no matter how much time he had left, he was going to focus all his energies on living his life to the fullest. I know that reads as cloyingly maudlin as a bad greeting card but I can’t think of a better way to write it.

It isn’t always easy to do that, to focus on today rather than tomorrow or the month after this one or on the coffin that waits. But it’s the only way to make today worth living, isn’t it? It’s the only way – to steal again from Dylan Thomas – to "rage, rage against the dying of the light."

In a way, when I allow that to happen, when I allow myself that focus, it does work to make today sweeter than any day in the past. It infuses the day with excitement, with light. In those moments, Buchwald is right. Dying is fun.

I saw my VA therapist today, a smart, gentle woman named Linda Vesley. "Do you think about death every day?" she wondered.

I told her I did, not because I wanted to but because it’s always lurking right below the surface, waiting. All it takes is someone asking how I am or the mention of cancer on the news or any other reminder that I have this disease and there I go again, thinking about death.

When that happens, and it happens frequently, it takes at least a few minutes to get my focus back. And when that happens, Buchwald is wrong. Dying ain’t fun at all.

Birthday Party

Early yesterday, I had to go to the VA for a cat scan. I was afraid, this time. I’m usually not but the last one I had showed my main tumor had grown a bit. This time, I fear, the news will be worse and then it’ll be time for chemo again. That's if I’m lucky.

Before the scan, I had to drink some barium. The last time I had one I drank banana-flavored barium. It didn’t taste too bad. This time, just to be different, I tried vanilla flavored. It wasn’t as good. Usually, the barium doesn’t bother me but yesterday, for some reason, it made me nauseous. Maybe because I was afraid.

After I came home, my wife – Lynne – and I celebrated her birthday. She loves presents as much as a little girl. When she opens a gift, her whole face lights up. Sometimes she giggles.
Buying her a present is always fun, always a pleasure, because I know how happy she’ll be, no matter what the gift.

Yesterday, she got clothes, a couple of necklaces, and a jazz CD from her sister, Jennifer, who lives in Richmond. I gave her a purse and a hat and dress she’d picked out. Her father gave her a check. She used a little of that money to buy herself a pair of shoes. I don’t think a man would be very happy if he got a pair of shoes as a gift. I guess that’s because to most men buying shoes is like buying tires for a car. More necessary than pleasurable. Lynne, however, loves shoes the way I love sailing.

I gave her three cards: two funny ones including a card with a picture of a monkey inside. For some reason, she loves monkey-pictures as much as shoes. The third card was mushy. It talked about love and how happy she’s made me and then said something about how I hoped we’d have a hundred more birthdays together.

When she read that card, she cried, just a little, but enough to let me know she cared.

After my nap, we went out for a late lunch in honor of the day. We didn’t go to a fancy place, just a seafood restaurant we both enjoy.

I couldn’t help myself. I kept looking at Lynne all during the meal. Every time I looked, she was smiling, her eyes were bright and she was beautiful. Happiness is like that. It’s attractive.
We ate fresh fish and then Lynne ordered chocolate cake with vanilla ice cream and chocolate sauce, a special birthday treat. Again, she was happy.

During the meal, while we ate and she got chocolate sauce on her chin, we didn’t talk about the cancer, or the cat scan, or the fact that I was still nauseous from the barium. We didn’t talk about the truth that – despite what the mushy card said – we weren’t going to have a whole lot of birthdays together.

I’m glad we didn’t talk about that stuff. It was nice to be free of the cancer for a bit, to take a break, to have lunch with my wife and see her smile.

Cranky

I’m cranky right now. My nose is bleeding. I’m sitting at my computer with a wad of toilet tissue stuck up my right nostril in the hope that blood won’t get all over my penultimate, or second to last, clean tee-shirt. (I don’t wear a shirt when I’m working. Sometimes I don’t even wear pants. I work alone so it’s okay. I say that knowing it’s an image that may, if you have ever seen me, make you cranky or make your nose bleed.)

I know I’m supposed to look on the bright side. I also know a nose-bleed is not a real big deal in this world of ours. Still. I’m cranky.

Than I remember that if I really wanted to do something about my nosebleed, all I would have to do is call the veterans hospital where I get my care and a nurse or doctor would either tell me what to do or tell me to get into the emergency room.

That made me think how lucky I am. I guess I mean that even with a nosebleed and cancer I can see the bright side.

I didn’t much like being in the air force almost 50 years ago. I thought I would when I saw the television commercials showing jet aircraft screaming across the sky and happy men and women – they were on leave, I guess – standing in front of the Louvre or a pyramid. I never got to fly a jet and by the time I got to Japan, my overseas posting, I was already itching to get back to civilian life.

When I got cancer and contacted the VA, nobody ever asked me if I liked being a serviceman. I’m lucky they didn’t. Nobody asked if my cancer was somehow service related. I’m lucky there, too. I told them only service-related injury I suffered was a cracked noggin when I fell off a bar stool in Tokyo or maybe Yokohama.

Come to think of it, the people at the VA hospital didn’t ask me much at all. Instead, they told me they’d take care of me. That was good news. If my treatment depended on the level of my happiness when I was in the service, I’d be dead already.

Two courses of chemo, surgery for a blocked artery, hospitalization four times in two years, psychological help to deal with the disease, and on and on. When I say I’d be dead without the VA, I’m not overstating the case. I would be, no doubt.

All in all, it seems I got a good deal for my four not-so-happy years in uniform, even if I never did get to fly a jet.

And as I’ve been thinking about all this, and counting my blessings, my nose stopped bleeding.

Go Irish!

I’ve been a Notre Dame football fan as long as I can remember.

I came by it honestly. My maternal grandmother, Delia Malloy from Mayo, was such a fan that when she was, herself, dying of cancer in 1943 she had my dad carry her from her bedroom into the living room where she could rest on the sofa and hear #1 Notre Dame play #2 Michigan in a game that determined the national champ. Notre Dame won, the story goes, she cheered weakly, and then died.

I like that story. I have a picture of my two brothers and me on my living room wall. We’re each wearing a Notre Dame letter sweater. Kevin is six, I’m four and my brother Pat is two. It’s the only picture I have of myself in which I think I look handsome.

When I was diagnosed with terminal cancer, I promised myself I wouldn’t die until I saw the Fighting Irish win another national championship.

I don’t know if I can make that promise stick but I sure hope I can.

Last year the Irish had their worst season ever. They won only three games. They lost to Navy for the first time in 43 years. My emotions were mixed. I was sad for the team and the school but I was kind of happy because I figured I had at least one more football season to go.

The Notre Dame Irish took to the field for the first time this year two days ago. They were playing San Diego State, a team they should have beaten without too much trouble. Things did not go so well during the first three quarters. The San Diego State Aztecs pushed the Irish around and looked like they were on the way to a big upset.

My wife went to church during the game and came home early in the fourth quarter.
She asked me how the game was going. She knows about my promise to myself not to die before ND wins it all.

I answered without thinking just as Notre Dame gave up the ball after a third-down run that didn’t pan out. "For this I stayed alive?" I said. "They look like bums."

My wife was shocked. Of course I was joking. Kind of.

In any case, the Irish came alive in the last quarter, scoring two touchdowns and winning the game by eight points. Then I felt pretty good. I felt good because, all joking aside, I do want to live long enough to see Notre Dame win big.

I guess I should be unnerved by every ND win. But I’m not. In fact, I feel pretty secure. That’s because I’ve also promised myself that I’m going to stay alive until the Chicago Cubs win the World Series. The last time that happened was 1908. So the odds of them both winning all the marbles any time soon seem pretty slim indeed.

I thank God I’m able to enjoy small things like football and jokes about the cancer. If I couldn’t laugh, who knows what I’d do?

When I was at the VA hospital the other day I walked past a young vet who almost certainly just returned from Iraq or Afghanistan. He was in a wheelchair being pushed down the hall by a nurse. He looked like he should have been a freshman at Notre Dame or at San Diego State or someplace. Instead, he was sitting in the chair, unable to hold his head up, leaning precariously to one side. Both legs of his sweatpants were folded around the stumps of his limbs.

After I watched the ND game, I remembered him. In an instant, I realized how unimportant Notre Dame football is and the Cubs, too. Immediately I remembered that even a guy with terminal cancer could have it worse. And though I may be wrong, I thought the young man in the wheel chair would be willing to change places with me in a heartbeat if he could just walk into a room, sit down and watch a football game.